DRC: The successes and enduring challenges of providing HIV/AIDS care

"For many, being infected with HIV was just a death sentence," said Dr. Maria Mashako, MSF's medical coordinator in the DRC. "The cost of antiretroviral treatment made it just inaccessible to most patients. Even MSF, in the early months of the center, did not have ARVs. Our team could only treat symptoms and opportunistic infections. It was very hard.”

Clarisse Mawika, 60, tested positive in 1999. She remembers these dark years all too well. 

"I don't like to think back about those times," she said. "When I got the result of my blood test, I thought 'prepare your funeral.’ Fortunately, my family chipped in to send me drugs from Europe. But at some point, they couldn't afford to pay anymore. I had to stop treatment for several months. My condition started to deteriorate. That's when someone I knew told me about MSF.”

MSF’s successful intervention efforts against HIV/AIDS

MSF’s treatment center was the first health facility to offer free ARVs to patients in Kinshasa, but was soon overwhelmed by the large number of people in need of treatment.

"It was just unbearable," recalled Dr. Mashako, still a young doctor in the facility then. "Consultations started at dawn and ended at night. There were so many patients..."

To increase access to care and treatment, MSF started supporting other health centers and hospitals in the provision of free screening tests, access to treatment, and care. In Kinshasa alone, around 30 health facilities received MSF support over the past two decades.

Our teams also set up a pilot model of care that allowed nurses to prescribe treatment and follow up with HIV-positive patients. This was a crucial initiative, as only a handful of doctors in each province were allowed to do so at the time.

This ongoing support resulted in the training of large numbers of health workers, and nearly 19,000 people received free ARV treatment in Kinshasa alone.

"This medical support was of course essential, but not enough," said Dr. Mashako. "We had to limit congestion in health facilities while bringing treatment closer to the patients. That is why we worked with the national network of patients’ associations to launch ARV distribution posts, directly managed by patients.”

Mawika was one of the driving forces behind the launch of those community-based distribution posts, called “PODI” in DRC.

"When we launched the first two posts in Kinshasa in 2010, there were less than 20 patients getting their treatment from it," she recalled. "Today, there are 17 PODIs in eight provinces, and more than 10,000 patients go there to get their medicines."

The approach proved so successful it was eventually integrated into the national HIV/AIDS plan.

Immense challenges remain

Access to treatment has been greatly expanded and over the last 10 years the number of new infections has dropped by half.

Yet MSF's work in the country has been carried out against a backdrop of insufficient national and international resources.

"When we set up an inpatient unit dedicated the provision of care for advanced HIV in 2008, we didn't think that it would still be full of patients more than a decade later,” said Dr. Mashako. “Over the years, we have doubled its initial bed capacity, but we still have to regularly put-up tents to accommodate patients. This reflects the immense challenges that remain in the fight against HIV/AIDS in DRC.”

Since its opening, more than 21,000 people have been admitted in MSF’s advanced HIV care unit in Kinshasa.

“In 2021, UNAIDS still estimated that one-fifth of the 540,000 people living with HIV in DRC did not have access to treatment and that 14,000 people had died of HIV in the country,” said Dr. Mashako “As a doctor, I am appalled that so many lives are still being lost for nothing,"

Boosting efforts is urgent and vital

DRC depends almost exclusively on international donors in the fight against HIV/AIDS. However, more support is necessary given the scale of the challenges.

“This is a reality that we have been denouncing for years," said Dr. Mashako. “This lack of funding is largely responsible for the lack of free voluntary testing, the lack of training for health care providers, chronic shortages of medicines, or massive disparities in HIV services between provinces.”

According to the Congolese national AIDS control program, only three provinces have adequate equipment to measure a patient’s viral load, which is essential to assess the evolution of the infection and the effectiveness of treatment. Setbacks in the fight against HIV/AIDS have even been confirmed in recent years. For instance, activities aimed at reducing mother-to-child transmission of HIV—by testing pregnant women and putting them on treatment—are on the decline. A quarter of children born to HIV-positive mothers did not have access to pediatric prophylaxis at birth, partly because of pediatric ARV shortages. And two-thirds of children living with HIV are not on ARV treatment.

"HIV will not be defeated in the DRC if stakeholders don’t boost up efforts," said Dr. Mashako. "If I only had one wish, it would be that MSF would not [need to] be here in 20 years' time to treat so many patients with HIV."